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dearjilly · 09-20-2012, 01:26 PM

Thank you so much my friends. I just loved reading all of your messages. It brings so much support and hope. The oncologist gave me a statistic life expectancy today, which I didn't ask for. I know that everyone is different and that Gamma knife is very successful, so I have to hang on to that. I'm going to LA tomorrow. I know it's risky, but I have Ellen tickets. Tune in September 26th!! I'll be in the audience busting a move.

I'm on the steroids, so that should reduce my swelling. Lets hope for no seizures. Fingers crossed.
Thanks for the link Denise. I read up and received a lot of knowledge. Did the doctors speak to you about Lapatinib? They said they wouldn't put me on it, unless there was something else going on in the rest of my body.
I am really hoping for a drug that will cross the brain blood barrier. I have hope.
Much love, Jill xo

09-20-2012, 01:26 PM	#9
dearjilly Senior Member Join Date: Feb 2012 Location: Ontario, Canada Posts: 115	Re: New to stage 4, what do I do now? Thank you so much my friends. I just loved reading all of your messages. It brings so much support and hope. The oncologist gave me a statistic life expectancy today, which I didn't ask for. I know that everyone is different and that Gamma knife is very successful, so I have to hang on to that. I'm going to LA tomorrow. I know it's risky, but I have Ellen tickets. Tune in September 26th!! I'll be in the audience busting a move. I'm on the steroids, so that should reduce my swelling. Lets hope for no seizures. Fingers crossed. Thanks for the link Denise. I read up and received a lot of knowledge. Did the doctors speak to you about Lapatinib? They said they wouldn't put me on it, unless there was something else going on in the rest of my body. I am really hoping for a drug that will cross the brain blood barrier. I have hope. Much love, Jill xo __________________ [ Feb 2013 - NED Mar 2013 - thought I had progression, watching brain. April 2013 - GOT MARRIED!!!! May 2013 - looks like no progression, but necrosis and bigger. Oct-Dec 2013 - Avastin tx Nov 2013 - MRI shows necrosis shrinkage!!!! Jan 2014 - Lepto Mening. disease found Feb 2014 - WBR March - BLAHHHH April 2014 - Liver mets found April 2014 to present - Chemo again, whooohoo. Fun! July 2014, scans look good. Stay on Perjetand hercertin. Nov. 2014 more lepto-mening disease more WBR. Feb 2015 more lepto-mening disease in spine and neck. More radiation. Start on TDM1 no more Perjeta stay on herceptin March 2015 more radiation in my thoracic area, more lepto-meningial disease April 2015 trying to walk again. [/SIZE][/FONT]