HER2 Support Group Forums - View Single Post - "significantly imroved" 2 yr disease ree survival if 1 yr of neratinib given after

Joannacco · 02-23-2017, 06:55 AM

I was reading your moving post. I also have a 5 1/2 year old son and a 9 year old daughter. Just finished my TCHP and I have surgery ahead of me in April. I really feel for you lady! You are trying everything and you will kick cancer's butt! Hang in there and continue to be strong. Question. I had an 8 cm patchwork line of IDC and it had one focal sample of LVI. It was grade 2. I also think I will get PCR from midway MRI. Did they do a Pet/CT scan on your whole body when you were first diagnosed and it was clear? It is so disheartening to think that you got a PCR from TCHP and were originally truly clear except for lymph nodes and then it all of the sudden metasticized. Ugh. My ca27 score was a 32 before my 5th chemo and it has inched up a bit from the original baseline. I just hope this doesn't happen to me.

02-23-2017, 06:55 AM	#9
Joannacco Junior Member Join Date: Feb 2017 Posts: 4	Re: "significantly imroved" 2 yr disease ree survival if 1 yr of neratinib given afte I was reading your moving post. I also have a 5 1/2 year old son and a 9 year old daughter. Just finished my TCHP and I have surgery ahead of me in April. I really feel for you lady! You are trying everything and you will kick cancer's butt! Hang in there and continue to be strong. Question. I had an 8 cm patchwork line of IDC and it had one focal sample of LVI. It was grade 2. I also think I will get PCR from midway MRI. Did they do a Pet/CT scan on your whole body when you were first diagnosed and it was clear? It is so disheartening to think that you got a PCR from TCHP and were originally truly clear except for lymph nodes and then it all of the sudden metasticized. Ugh. My ca27 score was a 32 before my 5th chemo and it has inched up a bit from the original baseline. I just hope this doesn't happen to me.