HER2 Support Group Forums - View Single Post

Andrea Barnett Budin · 12-07-2015, 11:51 AM

I know there is a test to see if you are Herceptin resistent. I have a friend who went through this. And her regimen was altered accordingly.

It's always important to share info, right up until the end. Penny was letting others know that for her it was as if she was triple negative.

My friend, many yrs later, is doing well. I wish Penny's doc could have found ways to deal with her situation better.

I do believe in 2nd and 3rd opinions always.

All brilliant. All well-meaning. Each has a little something to add to your information...

Blessings,
Andi

12-07-2015, 11:51 AM	#14
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Redwolf, Penny has joined the Angels. I know there is a test to see if you are Herceptin resistent. I have a friend who went through this. And her regimen was altered accordingly. It's always important to share info, right up until the end. Penny was letting others know that for her it was as if she was triple negative. My friend, many yrs later, is doing well. I wish Penny's doc could have found ways to deal with her situation better. I do believe in 2nd and 3rd opinions always. All brilliant. All well-meaning. Each has a little something to add to your information... Blessings, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...