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Old 06-10-2008, 04:47 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Unhappy SAD NEWS - Lolly has earned her wings

Dear Group -
Had a call this afternoon from Lolly's husband (the great looking guy she is hugging in her pic that shows with her posts). I am still in shock.

At 4:56 am Pacific time this morning, Lolly went to join her other HER2 sisters who she helped and comforted so much over the past years. Family and hubby by her side.

Hubby reported that she did complete the radiation, but the mets were too active to have much effect. The skin mets went deep and her breathing was affected. Earlier in May she went to the hospital rather suddenly feeling bad. She was stabilized and sent home on May 21 with oxygen and a morphine drip. Even though she could move around a little she was feeling too weak to get on the computer.

There was no hospice sent in as her amazing husband learned what to do for her and took off work to take care of his dear Lolly. How much love does this show??!!

"Her last days were exactly how she wanted them," I was told.

Her obituary will run in the Corvallis Gazette Times in a couple of days.

Lovely Lolly, we miss you, but you are doing other important work now.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 06-10-2008 at 05:15 PM..
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