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Old 07-09-2007, 08:04 AM   #16
Daisypink
Member
 
Join Date: Jun 2007
Location: Staffordshire, England
Posts: 22
Update on me....

well.. my mouth has been so sore all weekend, i decided to call the hospital this morning to ask them for something..

They had me in straight away to check my bloods which were ok but they said my mouth ulcers were too bad and that i have had to withdraw from this cycle of Xeloda.. the dose is too high for me.

They are going to reduce my dose for the next one.. they also gave me some orabase paste to put on the sores so they can heal..

Has anyone else had to have thier xeloda dose reduced on the first cycle?? I'm really scared that this is compromising my treatment and i'm really worried.

Jakki
xxx
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Jakki
-xx-

DX May 2005 grade 3 IDC - partial mastectomy/immediate LD Recon. 0 /20 lymph nodes affected
Er+PR+HER2-
E-CMF chemo July 05 - Feb 06, 33 x rads. Tamoxifen
June 06 - Regional Reccurrence - supraclavicular lymph nodes, HER2+. Taxotere chemo Aug 06 - Dec 06, 25 x rads, Arimidex, zoladex, Herceptin.
Feb 07 - further supraclavicular progression, re-staging tests.
April 07 - Lung mets DX, oncologist trying to get me on Tykerb & xeloda on LEAP trial.
June 07 - Lung mets doubled in size, 3 new tumours and one in my back - commenced Tykerb/Xeloda - Zoladex & Arimidex stopped.
September 07 - Tykerb/Xeloda failed.. lung mets still growing and more new ones
October 2007 - Commenced Vinorelbine and back on Herceptin again..
March 2008 - New Scans reveal lung mets still progressing, now have 3cm Liver Met and Bone Met to Sternum - looking for a new clinical trial...
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