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Daisypink · 07-08-2007, 02:51 AM

Think i spoke too soon.....

I seemed to be doing ok with the Tykerb/Xeloda until yesterday when i felt really under the weather was almost sick and had some diarrhhea. i also have had a headache since i started taking it.. some days its bearable but other days feels like i have a major hangover.. the worst part for me now is i have several mouth ulcers and some on my tongue.. its making eating and drinking very painfull. Despite rinsing in my mouthwashes every few hours. The fatigue hits me everyday mid afternoon too.. its day 9 so i am guessing my bloods are dropping now at this stage..

I am assuming all of this is normal?? Have any of you had really bad sores in your mouth and any tips for getting rid of them quickly??

Love Jakki
xxxx

07-08-2007, 02:51 AM	#13
Daisypink Member Join Date: Jun 2007 Location: Staffordshire, England Posts: 22	Think i spoke too soon..... I seemed to be doing ok with the Tykerb/Xeloda until yesterday when i felt really under the weather was almost sick and had some diarrhhea. i also have had a headache since i started taking it.. some days its bearable but other days feels like i have a major hangover.. the worst part for me now is i have several mouth ulcers and some on my tongue.. its making eating and drinking very painfull. Despite rinsing in my mouthwashes every few hours. The fatigue hits me everyday mid afternoon too.. its day 9 so i am guessing my bloods are dropping now at this stage.. I am assuming all of this is normal?? Have any of you had really bad sores in your mouth and any tips for getting rid of them quickly?? Love Jakki xxxx __________________ *Jakki* -xx- DX May 2005 grade 3 IDC - partial mastectomy/immediate LD Recon. 0 /20 lymph nodes affected Er+PR+HER2- E-CMF chemo July 05 - Feb 06, 33 x rads. Tamoxifen June 06 - Regional Reccurrence - supraclavicular lymph nodes, HER2+. Taxotere chemo Aug 06 - Dec 06, 25 x rads, Arimidex, zoladex, Herceptin. Feb 07 - further supraclavicular progression, re-staging tests. April 07 - Lung mets DX, oncologist trying to get me on Tykerb & xeloda on LEAP trial. June 07 - Lung mets doubled in size, 3 new tumours and one in my back - commenced Tykerb/Xeloda - Zoladex & Arimidex stopped. September 07 - Tykerb/Xeloda failed.. lung mets still growing and more new ones October 2007 - Commenced Vinorelbine and back on Herceptin again.. March 2008 - New Scans reveal lung mets still progressing, now have 3cm Liver Met and Bone Met to Sternum - looking for a new clinical trial...