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Old 06-25-2007, 12:05 PM   #6
Shell
Senior Member
 
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
Jakki-

I was in the clinical trial for xeloda/tykerb, and had the H/F syndrome as well as diarhhea. A great website is www.xeloda.com, where they have a treatment diary, that lets you mark down your symptoms - as you are taking pills, you probably won't see your onc as often, and believe me the days start to run together - it was very helpful for me...

Kind regards,
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Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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