HER2 Support Group Forums - View Single Post - Went with 20 year old to dr. today..advice

mamacze · 06-11-2009, 07:52 PM

Hi Michelle;
Yikes - what a huge burden - for you, your family and this dear young child who must feel like she has the weight of the world on her shoulders.

I would either fly to MD Anderson or Dana Farber. I attended the Metastatic Breast Cancer Network annual conference there in May (www.mbcnetwork.org); and this speaker is an oncologist who ONLY treats young woman with cancer - she was incredible and insightful - I would fly halfway around the world to see her and when it comes to your life; how big a hit is a flight to Boston for a good solid second opinion? Her name is:
Ann H. Partridge, M.D., M.P.H.
Director, Program for Young Women with Breast Cancer
Dana-Farber/Brigham and Women’s Cancer Center
Assistant Professor of Medicine, Harvard Medical School

Also, I would run to check out the Tumor Vaccine Group clinical trials in Seattle - I flew there from Connecticut - 8 times (check out angel flights; noted in above post); if she is not eligible for their clinical trials (which for me any way had virtually NO side effects), Dr. Disis can recommend a clinical trial in Baltimore.

Don't take the tiger by the tail; RIDE IT...God speed to you all - stay in touch please.
Love Kim from CT

06-11-2009, 07:52 PM	#14
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 638	Hi Michelle; Yikes - what a huge burden - for you, your family and this dear young child who must feel like she has the weight of the world on her shoulders. I would either fly to MD Anderson or Dana Farber. I attended the Metastatic Breast Cancer Network annual conference there in May (www.mbcnetwork.org); and this speaker is an oncologist who ONLY treats young woman with cancer - she was incredible and insightful - I would fly halfway around the world to see her and when it comes to your life; how big a hit is a flight to Boston for a good solid second opinion? Her name is: Ann H. Partridge, M.D., M.P.H. Director, Program for Young Women with Breast Cancer Dana-Farber/Brigham and Women’s Cancer Center Assistant Professor of Medicine, Harvard Medical School Also, I would run to check out the Tumor Vaccine Group clinical trials in Seattle - I flew there from Connecticut - 8 times (check out angel flights; noted in above post); if she is not eligible for their clinical trials (which for me any way had virtually NO side effects), Dr. Disis can recommend a clinical trial in Baltimore. Don't take the tiger by the tail; RIDE IT...God speed to you all - stay in touch please. Love Kim from CT __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!