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CoolBreeze · 10-26-2011, 04:20 PM

Hi Ladies,

I was hoping somebody understood, but I see I'm in an unusual place.

I am about the most assertive person you'd ever want to meet, and would have no hang-ups insisting on an appointment if that is what needed to be done. In fact, I have my onc's personal cell number and am not afraid to use it.

This is the way it has to be. The surgeon has to sign off before I get chemo or zometa or hercepton for my health. Having your liver removed means you react differently to drugs. Whatever another person's onc said to them-unless you had a liver resection and ablation-it doesn't apply.

My onc has practices out of town so I can only see him Wednesday, and I have the first Wednesday appt after I see the surgeon. I usually see him in the afternoon but I have a morning appt so there will be time to get my meds if allowed.

I wasn't asking for advice on how to handle the situation, just looking for a little sympathy and understanding.

But, I guess maybe if you haven't had this surgery, it's hard to understand.

In any event, I did buy that bracelet as a reminder to think cure.

10-26-2011, 04:20 PM	#17
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Very nervous Hi Ladies, I was hoping somebody understood, but I see I'm in an unusual place. I am about the most assertive person you'd ever want to meet, and would have no hang-ups insisting on an appointment if that is what needed to be done. In fact, I have my onc's personal cell number and am not afraid to use it. This is the way it has to be. The surgeon has to sign off before I get chemo or zometa or hercepton for my health. Having your liver removed means you react differently to drugs. Whatever another person's onc said to them-unless you had a liver resection and ablation-it doesn't apply. My onc has practices out of town so I can only see him Wednesday, and I have the first Wednesday appt after I see the surgeon. I usually see him in the afternoon but I have a morning appt so there will be time to get my meds if allowed. I wasn't asking for advice on how to handle the situation, just looking for a little sympathy and understanding. But, I guess maybe if you haven't had this surgery, it's hard to understand. In any event, I did buy that bracelet as a reminder to think cure. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.