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Re: NED Stage IV? Chemoless stage IV?
Sorry for the delay in replying, but the coming holidays have been busy in my house.
As you can see by my signature I had a return of cancer in my lungs, liver, lymph nodes, and bones. I did 12 weeks of Taxol, Zometa and Herceptin and then had a scan and I was NED. I have remained NED since April 2009 on Herceptin only. I dropped Zometa after a bone scan in July said I was still clear of bone mets. I also was experiencing pain in my jaw and wanted to take a break from Zometa, so that is my story.
19 months and counting! You just never know how this devil is going to act.
Please stay positive for your Mom and you and know that there is HOPE.
Merry Christmas to you and your family,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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