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Old 12-20-2011, 09:59 PM   #4
Lauriesh
Senior Member
 
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
Re: NED Stage IV? Chemoless stage IV?

I am NED with liver mets, but didn't have bone mets.

I have been off chemo for almost a year, and only take Herceptin and tykerb.

Some women will take a break from chemo, but remain on hormonals and Herceptin, if they are er/pr+ and are stable.

there are some long term stage 4's that have been NED for many years, and have stopped Herceptin.

Some women remain stable on Herceptin and tykerb, without any chemo, and will only be on that combination even if they are not NED.

There seems to be numerous combinations of treatments that stage 4 women have- combining hormonals, chemo and Herceptin and tykerb.

Laurie
__________________
diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
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