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StephN · 06-10-2008, 11:30 PM

...there had been a gentler way to let you all know about Lolly. Sorry. She meant so much to the success of this web site in its infant days. And was such a beacon of hope here.

When I found this site over 5 years ago (I am losing track!) Lolly greeted me with open arms. We meet here when she came to the University of Washington to participate in the vaccine trial. I first met her in person the day after my Gamma Knife procedure.

She was so upbeat and happy to try the vaccine.

One thing that helps explain her compassion and helpful nature is that she told me her grandfather was a doctor. She seemed to know a lot about how bodies work and not be afraid to find out more to understand as much as possible about her/our kind of cancer.

She lived with much grace and I know she did not want to hurt us with her dire situation.

06-10-2008, 11:30 PM	#31
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	I Wish ... ...there had been a gentler way to let you all know about Lolly. Sorry. She meant so much to the success of this web site in its infant days. And was such a beacon of hope here. When I found this site over 5 years ago (I am losing track!) Lolly greeted me with open arms. We meet here when she came to the University of Washington to participate in the vaccine trial. I first met her in person the day after my Gamma Knife procedure. She was so upbeat and happy to try the vaccine. One thing that helps explain her compassion and helpful nature is that she told me her grandfather was a doctor. She seemed to know a lot about how bodies work and not be afraid to find out more to understand as much as possible about her/our kind of cancer. She lived with much grace and I know she did not want to hurt us with her dire situation. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.