HER2 Support Group Forums - View Single Post - Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)

evlin75 · 08-29-2014, 05:14 PM

Paul,

Best wishes to you and Nina. Susan is still doing the ommaya Herceptin every week. Just finished cyber knife to an enlarged subclavicle lymph node.

Her genome results indicate afatinib or neratinb is appropriate for her because of the mutations found. They are trying for the afatinib first but on first try the insurance has refused approval.

The chemotherapy is getting tough for her - low blood counts and unsteadiness. She has taken herself off of them - hoping for the more targeted approach.

Ev

08-29-2014, 05:14 PM	#173
evlin75 Senior Member Join Date: Sep 2007 Posts: 118	Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase Paul, Best wishes to you and Nina. Susan is still doing the ommaya Herceptin every week. Just finished cyber knife to an enlarged subclavicle lymph node. Her genome results indicate afatinib or neratinb is appropriate for her because of the mutations found. They are trying for the afatinib first but on first try the insurance has refused approval. The chemotherapy is getting tough for her - low blood counts and unsteadiness. She has taken herself off of them - hoping for the more targeted approach. Ev