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StephN · 03-23-2020, 07:15 PM

Coming in on this a bit behind the good news, but this is JUST what I needed! So happy that the pain and suffering is worth the results. You just lucked out to get this new drug and blaze a new path for so many of us who will need this drug at some point.

I recall our dear founder Joe saying that after Herceptin the game would be staying alive and stepping from one new drug or trial to the next as long as we could. You keep rounding third, and trodding a long path after that.

It is not an easy life, but here you are, watching people die of something we never even imagined! Maybe you can make up a dance called "Do the Hunker Down"?

03-23-2020, 07:15 PM	#20
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: ENHERTU aka DS8401A Coming in on this a bit behind the good news, but this is JUST what I needed! So happy that the pain and suffering is worth the results. You just lucked out to get this new drug and blaze a new path for so many of us who will need this drug at some point. I recall our dear founder Joe saying that after Herceptin the game would be staying alive and stepping from one new drug or trial to the next as long as we could. You keep rounding third, and trodding a long path after that. It is not an easy life, but here you are, watching people die of something we never even imagined! Maybe you can make up a dance called "Do the Hunker Down"? __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.