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Karen Wheel · 08-15-2009, 12:44 AM

I have read a bunch of old threads but haven't seen anything (yet) on these issues - so want to ask if others have had these issues when on Herceptin?

At first - I was blaming the chemo (took 9 weeks of Navelbine) but I've been off for two months and the side effects are still here.

1) Bladder - it seems messed up - they say no infection, but feels strange all the time and I do drink a lot of water (on veg diet so not drinking ANYTHING bad!) only fresh fruit and veg juice from my juicer --- or water. However, I go every hour or so to the bathroom and feels like I have waited 5 hours --- it is strange! My oncologists have done two separate urine tests and now are sending me to a specialist to do an exam and ultrasound.

2) Sleep. ARGH! I used to sleep like a baby. Now I dream and dream and dream and when I wake up (1-2 times in the night to pee ugh- other problem) but I can remember a mass of strange dreams - like I have done some sort of long rushed vacation, or scavenger hunt in my sleep. In the mornings I wake up and feel exhausted from the nights events (of dreams). THANK GOD - I haven't had hardly any scary dreams - but it is still making me slightly nuts.

Any of you have these symptoms???

Thank you in advance!
Live Long!
Karen

Age – 44 pre- menopausal
No children – no pregnancies
2-09 – Biopsy – Cancer
3-09 – Partial mastectomy Right – 3 nodes taken but not involved
Tumor results: 1.5 cm – Stage 1 - Her-2 +++
Estrogen positive 80% - Progestin 10% - Ki67 postive 30%
4-09 – Started Herceptin (for 1 year every 21 days)
4-09 – 6-09 Chemo – 9 weeks of Navelbine
7-09 - 30 sessions of radiation (almost finished!)

08-15-2009, 12:44 AM	#1
Karen Wheel Senior Member Join Date: Jul 2009 Location: Sardegna, Italy Posts: 362	Herceptin - Bladder and/or sleep changes? I have read a bunch of old threads but haven't seen anything (yet) on these issues - so want to ask if others have had these issues when on Herceptin? At first - I was blaming the chemo (took 9 weeks of Navelbine) but I've been off for two months and the side effects are still here. 1) Bladder - it seems messed up - they say no infection, but feels strange all the time and I do drink a lot of water (on veg diet so not drinking ANYTHING bad!) only fresh fruit and veg juice from my juicer --- or water. However, I go every hour or so to the bathroom and feels like I have waited 5 hours --- it is strange! My oncologists have done two separate urine tests and now are sending me to a specialist to do an exam and ultrasound. 2) Sleep. ARGH! I used to sleep like a baby. Now I dream and dream and dream and when I wake up (1-2 times in the night to pee ugh- other problem) but I can remember a mass of strange dreams - like I have done some sort of long rushed vacation, or scavenger hunt in my sleep. In the mornings I wake up and feel exhausted from the nights events (of dreams). THANK GOD - I haven't had hardly any scary dreams - but it is still making me slightly nuts. Any of you have these symptoms??? Thank you in advance! Live Long! Karen Age – 44 pre- menopausal No children – no pregnancies 2-09 – Biopsy – Cancer 3-09 – Partial mastectomy Right – 3 nodes taken but not involved Tumor results: 1.5 cm – Stage 1 - Her-2 +++ Estrogen positive 80% - Progestin 10% - Ki67 postive 30% 4-09 – Started Herceptin (for 1 year every 21 days) 4-09 – 6-09 Chemo – 9 weeks of Navelbine 7-09 - 30 sessions of radiation (almost finished!)