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Old 02-19-2013, 08:11 PM   #33
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
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Re: 3 years + on Herceptin, Why

Hi iluv2scrub,

Herceptin is usually given for a year. Some patients (myself included) stopped early because of heart issues, while others (such as most stage IV patients) stay on it as long as it is needed.

When I was told to have an ultrasound after a CT scan of the abdominal area (mainly the liver) in 2009, I was sure they had found 'something'. Turned out it was to confirm the diagnosis of hepatic hemangioma - a benign cluster of blood vessels in the liver and is usually fueled by estrogen.

It's pretty hard not to panic when we are called back to have more tests done - especially at the beginning of our cancer journey. I remember all the tears I'd shed in the waiting room, all the 'SOS' I mailed/e-mailed home... But my 10th anniversary is coming in less than 4 months ...

Hang in there. Ask any questions - someone will find the answer for you. And yes, there's always an explanation for whatever we are going through!
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Jackie07
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-19-2013 at 08:21 PM..
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