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Susan;
I quite understand you are scared.....it is very scarey to get this news. However, it is not a death sentence. Having said that I do believe you should follow your doctors advice. Regardless of the size of the tumor being Her2+ brings with it a higher risk than normal (I can't believe I'm using the word "normal" with cancer.....lol) of mets....that is cancer spreading. It is important that you fight and beat off this disease right up front. Is it fair to your sister....well I don't have a sister myself but I know that under the same circumstances any member of my family would step right in and be there for me. I am sure you are more worried about your sister than she is about you intruding on her life. Your husband however.......I hope you take him to the cleaners....what a piece of work!! Settle in, relax, don't sweat the small stuff and you and your sister and her family will all get through this just fine. It may be just the time you need to recover from your marriage as well.... Keep posting us......
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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