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Chelee · 08-12-2006, 05:03 PM

Sandy, Your the first one that has told me they didn't have radiation and they are still here.

That does make me feel better. However I am sure SORRY to hear you didn't get rads due to skin mets (Thats awful.)

I wish I could email my oncologist. But they don't have it set-up so we can do that. I asked her a long time ago about that. A *third* party I like down there told me to SIT down and talk to my onc doc about this and explain how i am feeling. I tried to tell her...thats half the problem...my onc doc never has time for me...and won't make any. She has so many patients she runs us all through this place like its a MILL.

This nurse practioner I like went to speak to my onc doc for me to express how I am feeling. I THOUGHT things would get better after that? But the NP came back and told me that my onc doc said she is NOT upset with me...and there is no problem....this is JUST the WAY SHE IS. (Hello...whats that suppose to mean?!) That means she will never have time for me and I can take it or leave it?

Sandy, I do know at my next appt with my oncologist I am going to tell her how I don't think thats right how they all left me hanging. I am SUPPOSE to be an IMPORTANT part of my medical team and decisions if you listen to them. But yet they won't tell me anything no matter how I go about trying to get the information.

I am giving my oncologist one more chance. I WILL lay it on the table. Something has to change because I can't deal with this as it is. They show me no respect or compassion. How can they be so un-caring? I have shown them nothing but respect and been considerate of their time. I have had two different people down there try to help me straighten out this problem with my onc doc & our on-going communication problem. But the onc doc makes them think everything is fine....and yet nothing changes.

The more I work at fixing this problem...it seems the worse it gets. I just want to go SOME PLACE else for my treatment and I CAN'T. That is half the problem I believe. These doctors KNOW we are STUCK at their cancer center rather we like it or not and it gives them room to treat us anyway they want to and get away with it. Gives them all the power because we CAN'T walk away. (Which in any other case I ALWAYS DO.) I speak with my feet any chance I get! But I HAVE to go here...so what can I do.

Thanks Sandy...I will keep trying to resolve this...but I sure don't need all this when battling this misrable diesease. (And they "onc doc's" know it better then anyone. SHAME on all of them! This place is a joke...except for the infusion nurses...they are all AWESOME. Thank God for all of them...they really do care about us and will do anything for you.

Thanks again Sandy.

God bless you.

Chelee

08-12-2006, 05:03 PM	#17
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Sandy, Your the first one that has told me they didn't have radiation and they are still here. That does make me feel better. However I am sure SORRY to hear you didn't get rads due to skin mets (Thats awful.) I wish I could email my oncologist. But they don't have it set-up so we can do that. I asked her a long time ago about that. A third party I like down there told me to SIT down and talk to my onc doc about this and explain how i am feeling. I tried to tell her...thats half the problem...my onc doc never has time for me...and won't make any. She has so many patients she runs us all through this place like its a MILL. This nurse practioner I like went to speak to my onc doc for me to express how I am feeling. I THOUGHT things would get better after that? But the NP came back and told me that my onc doc said she is NOT upset with me...and there is no problem....this is JUST the WAY SHE IS. (Hello...whats that suppose to mean?!) That means she will never have time for me and I can take it or leave it? Sandy, I do know at my next appt with my oncologist I am going to tell her how I don't think thats right how they all left me hanging. I am SUPPOSE to be an IMPORTANT part of my medical team and decisions if you listen to them. But yet they won't tell me anything no matter how I go about trying to get the information. I am giving my oncologist one more chance. I WILL lay it on the table. Something has to change because I can't deal with this as it is. They show me no respect or compassion. How can they be so un-caring? I have shown them nothing but respect and been considerate of their time. I have had two different people down there try to help me straighten out this problem with my onc doc & our on-going communication problem. But the onc doc makes them think everything is fine....and yet nothing changes. The more I work at fixing this problem...it seems the worse it gets. I just want to go SOME PLACE else for my treatment and I CAN'T. That is half the problem I believe. These doctors KNOW we are STUCK at their cancer center rather we like it or not and it gives them room to treat us anyway they want to and get away with it. Gives them all the power because we CAN'T walk away. (Which in any other case I ALWAYS DO.) I speak with my feet any chance I get! But I HAVE to go here...so what can I do. Thanks Sandy...I will keep trying to resolve this...but I sure don't need all this when battling this misrable diesease. (And they "onc doc's" know it better then anyone. SHAME on all of them! This place is a joke...except for the infusion nurses...they are all AWESOME. Thank God for all of them...they really do care about us and will do anything for you. Thanks again Sandy. God bless you. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.