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Jean, I know your right & I need to keep going. But I will be honest...they have really worn me down this time. I have been through so many head games with these people. I don't know how its even "legal" to do people the way they have done me? (Not to mention all the delays in my care?)
There are so MANY other wonderful women on here that has been through so much more then this and look at them keep going. I need to get over this and move on.
I DO feel frozen right now. I feel like someones beat me half to death. I have come so far for them to just RUN OVER ME AGAIN.
I need to find out from my insurance company that if I get another opinion somewhere...if I can get the tx at that place? (Which I don't think I can?) And again...I am NOT sure if there is any purpose to doing rads this late? By the time I get another opinion set up...it will be at least another two weeks at the speed these people work. I am going to check into it anyway...maybe some GOOD will come out of it some where like it did for you Jean.
Jean, Lani, Barbara, Alaska Angel, & Sandy H., I can't even begin to tell you how much it means to me that you have all replied and are trying to help me and just showing me someone cares. (Here I go again...just when I think I am all cried out, here comes more tears.) Thanks to each and everyone of you. If I could just find that ONE doctor that cared I would feel so much better.
God Bless each and everyone of you.
Your all in my thoughts & prayers.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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