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Chelee · 08-12-2006, 03:02 PM

Susie, Your so right...that is exactly how I feel. I am just a number to them...I mean nothing to anyone of my so called medical team. All they give me is lip service. It seems the more I ask them questions or want answers...the more problems I encounter with them?! It seems like everyone just does what their told and never asks them a thing. Since I do and want to know everything....I get treated the worse it seems. I have been very pro-active in my tx & its gotten me no where. Its like they want to PROVE to me they are in total control and I have no say over anything. If I had treated these people bad or been hostile...I could understand this. But I feel about as important as a piece of gum on the bottom of their shoe that they can't get off of it. I ask questions and I am never asking in a way like I don't trust them...so I don't know where this comes from?

Even the last meeting I requested with my Rad Onc doc we were done talking. We both stood up at the same time and I said "Thank you so much for your time". He acted mad that I even wanted any of his time and bolted out the office door in front of me and didn't say a word to me. I thought he would at least say "Your welcome". (And believe me...he heard me.) These people love to make me feel bad all the time. I can't take much more of this. I havent' cried this much since I was first DX. I can't stop. I don't know what else to do. I have tried everything. I CAN'T find one person at this place that is in my corner and really cares about me.

I sure hope some how I CAN find that one doctor that will say "I can and will help you". So far Susie...its not looking good. I am SO STUCK in this stupid HMO GROUP...you can't get out of it. If you can..I don't know how.

Thanks Susie for believing me and understanding that this problem exists. I get fed up with people I speak to that defend these doctors I am talking about. I LIVE it...I ought to know how I am being treated and ignored in hopes I will just go away. I have NEVER been treated like this in my life. Nothing even close..and of all the times when I have cancer. How can they be so cruel to someone that is just fighting for their life?

Chelee

08-12-2006, 03:02 PM	#13
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Susie, Your so right...that is exactly how I feel. I am just a number to them...I mean nothing to anyone of my so called medical team. All they give me is lip service. It seems the more I ask them questions or want answers...the more problems I encounter with them?! It seems like everyone just does what their told and never asks them a thing. Since I do and want to know everything....I get treated the worse it seems. I have been very pro-active in my tx & its gotten me no where. Its like they want to PROVE to me they are in total control and I have no say over anything. If I had treated these people bad or been hostile...I could understand this. But I feel about as important as a piece of gum on the bottom of their shoe that they can't get off of it. I ask questions and I am never asking in a way like I don't trust them...so I don't know where this comes from? Even the last meeting I requested with my Rad Onc doc we were done talking. We both stood up at the same time and I said "Thank you so much for your time". He acted mad that I even wanted any of his time and bolted out the office door in front of me and didn't say a word to me. I thought he would at least say "Your welcome". (And believe me...he heard me.) These people love to make me feel bad all the time. I can't take much more of this. I havent' cried this much since I was first DX. I can't stop. I don't know what else to do. I have tried everything. I CAN'T find one person at this place that is in my corner and really cares about me. I sure hope some how I CAN find that one doctor that will say "I can and will help you". So far Susie...its not looking good. I am SO STUCK in this stupid HMO GROUP...you can't get out of it. If you can..I don't know how. Thanks Susie for believing me and understanding that this problem exists. I get fed up with people I speak to that defend these doctors I am talking about. I LIVE it...I ought to know how I am being treated and ignored in hopes I will just go away. I have NEVER been treated like this in my life. Nothing even close..and of all the times when I have cancer. How can they be so cruel to someone that is just fighting for their life? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.