HER2 Support Group Forums - View Single Post

StephN · 08-12-2006, 12:13 PM

Hi Marlys -

I will answer you in a new post with more information on the fibrin production and partial occusion problem that you seem to be having.
Don't know about the pain. Lucky that this complication with your port is coming near the end of your treatments.

Since I was having NO problems with my port when I completed adjuvent therapy I left it in. I was thinking that I would have it taken out after the rads and my skin had healed if that would be the case.

My tumor markers were still a bit high, so I was not in a rush to get the port removed. This was in the days before adjuvent Herceptin. Glad I kept the port as as I needed it in an emergency situation and would have had to have a surgery on top of starting a harsh chemo treatment.

Sheila - I am sure it would have been CHEAPER and MUCH MORE enjoyable to fly you and your hubby to Seattle and have him fix the water pipe! I have not had any wine until last night with dinner due to taking the pain pills. Hubby brought home a nice sparkling from Samur in the Loire Valley. It was as good as a real Champagne! And very refreshing.

08-12-2006, 12:13 PM	#18
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Marlys Hi Marlys - I will answer you in a new post with more information on the fibrin production and partial occusion problem that you seem to be having. Don't know about the pain. Lucky that this complication with your port is coming near the end of your treatments. Since I was having NO problems with my port when I completed adjuvent therapy I left it in. I was thinking that I would have it taken out after the rads and my skin had healed if that would be the case. My tumor markers were still a bit high, so I was not in a rush to get the port removed. This was in the days before adjuvent Herceptin. Glad I kept the port as as I needed it in an emergency situation and would have had to have a surgery on top of starting a harsh chemo treatment. Sheila - I am sure it would have been CHEAPER and MUCH MORE enjoyable to fly you and your hubby to Seattle and have him fix the water pipe! I have not had any wine until last night with dinner due to taking the pain pills. Hubby brought home a nice sparkling from Samur in the Loire Valley. It was as good as a real Champagne! And very refreshing. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.