Thread: What CAN I do?
View Single Post
Old 08-11-2006, 07:29 PM   #9
Sandy H
Senior Member
 
Sandy H's Avatar
 
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
Cherlee I can feel your frustration having been through some this week myself. First of all don't panic over not getting radiation. I did not have radiation because I had skin mets taking off like wild fire. I am still here and its going on 6 years with IBC (inflammatory). Perhaps, you can send your oncologist an e-mail and explain your frustration. Tell him you don't feel its right not to be called on results, decisions. You are not being treated with respect. Lay the cards on the table and be right up front. You can do it in a tackful way. I did that this week with my frustration and I got a reply back the very next morning. My oncologist is a very caring person. I am very fortunate to have a team of caring nurses and doctors. However, if I have a problem that concerns me or frustrates me I tell someone. It has always been resolved to my satisfaction. It doesn't have to be to my satisfaction as long as I am treated with respect and compassion. I hope you will think about doing this. If not by e-mail ask for an advocate and sat down with that person and tell him/her how you really feel. We have a nurse in our oncology that will take a patient in her office with door closed and talk-been there and done it. They can not help if you don't tell them!! Let us know how you make out and what you decide to do. If you have lost all confident in them perhaps, you need to think about changing to another facility and you can mention that as well. These people for the most part are very caring and want to help. You don't need this stress in battling this disease so try to get it resovled now. hugs, Sandy
Sandy H is offline   Reply With Quote