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Old 08-11-2006, 12:34 PM   #1
IRENE FROM TAMPA
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Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
Thumbs up Started Tykerb/xeloda Today

Well, the day finally arrived and I met with my oncs office yesterday for them to "HAND OVER" the Tykerb. What a whirlwind of paperwork passing hands back and forth and finally opening up officially as at EAP compassionate use site. I believe they are one of two in Florida so far. The other is M.D. Anderson in Orlando for any of you that live in this area. They plan on getting many more opened up and I pray your locations open up soon for those of you that are waiting.

I took my first dose this a.m. of both to follow with dose of Xeloda this evening.

Ladies, I am praying for myself and well as for all of us that this is our MIRACLE DRUG. There are many more to follow if not.

I THINK I CAN NOW START CONCENTRATING ON MY TRIP.

Good luck to us all.

Everyone take care ...
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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