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Old 08-10-2006, 03:07 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Not such a great week ...

No bad scan or anything like that.
Had my Port-A-Catheter replaced on Tuesday afternoon. So, been home with a very sore chest and not able to do much with my arms either. (The pain pills are kicking in right now, so I am up for a while.)

My old port was in for nearly 6 years and was set rather low and deep. There was a lot of scar tissue around it and it was harder to get out for that reason. My new port is placed right where I did not want it, but the surgeon did not want to go lower and into my breast tissue. Hey - it is MY body ... but I was knocked out, what could I do?

We are in the middle of an EXPENSIVE plumbing repair that we discovered yesterday morning. I was not well enough to do a lot of calling around and get more than one on-site opinion or estimate. We just needed it done and my hubby was wrapped up in other things. So, I think we are getting skinned alive.

Glad to hear things are better with most of you - like finally getting Tykerb and finishing treatments. Life goes on around us no matter how we are feeling.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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