lu ann, You mentioned the CTCA to me before when I was having a different problem. I did call them...they were really nice and tried to help me as much as possible. The women I talked to seemed as if since my insurance like since my insurance would not be accepted there...they couldn't do much for me. I have no way of paying for it either. I am LOCKED into one of those groups. Now sometimes you CAN go out-of-network if your group can't provide what is needed...which right now I MIGHT fall into that category.
But the biggest problem I am worried about now is how LATE I am in starting rads. Ten weeks already! I should of started at three weeks...I am sure glad the place I am going it really worried about it when I am stage IIIA. So even if I could go to CTCA...I don't have much more time to arrange something like that. It sure seems like there should be some way of doing my radiation without doing more damage to my lungs?
But I sure appreciate your information. Thanks for trying to help me.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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