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Dear Jan,
Certainly on this site, you are not alone and Christine's story will give you hope. You're in a kind of shock right now but reading other people's postings, it seems that this is more usual and is not necessarily the cancer growing but may be actually dying.
Also talk to them about Tykerb/Lapitinib (spelling?)
A big cyber hug and I hope you have a good support team near you but you have a lot of people here pulling for you.
Keep fighting and believing,
sarah
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