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kareneg · 08-04-2006, 07:50 PM

Hi Chelee,

I know how you feel all though I have never had to have rads but I have been on treatment for almost eight years now, and this past April I started progressing on Taxol, Carbo and Herceptin. So my oncologist said I am going to try to get you on a clinical trial with Lapatinib,so on that day I left his office with nothing....... no appointments for treatment no follow-ups nothing I felt like I was just left for dead. It's a horrible feeling! I know how you feel it's not right we should not have to worry like this! I went thru over 2 months with no treatment nothing at knowing that I was progressing, what a horrible feeling! I went from 8 years of treatment and doctor visits and having a routine to nothing at all. It is not right being put through this!!!
I am sending you all my best wishes and prayers, and to let you know your not alone.

08-04-2006, 07:50 PM	#9
kareneg Senior Member Join Date: Nov 2005 Location: Lincoln, Rhode Island Posts: 371	Hi Chelee, I know how you feel all though I have never had to have rads but I have been on treatment for almost eight years now, and this past April I started progressing on Taxol, Carbo and Herceptin. So my oncologist said I am going to try to get you on a clinical trial with Lapatinib,so on that day I left his office with nothing....... no appointments for treatment no follow-ups nothing I felt like I was just left for dead. It's a horrible feeling! I know how you feel it's not right we should not have to worry like this! I went thru over 2 months with no treatment nothing at knowing that I was progressing, what a horrible feeling! I went from 8 years of treatment and doctor visits and having a routine to nothing at all. It is not right being put through this!!! I am sending you all my best wishes and prayers, and to let you know your not alone. __________________ Love and Hope Karen IDC DX 1998 STAGE I ER+/ PR+ AC CHEMO TILL FEB 1999 Tamxofin till 2001 2001 exstensive liver mets and mets to lungs Started weekly taxol Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex 2005 Navelbine herceptin had RFA Then back on taxol with herceptin April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin Feb 2007 started Doxil August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas October 2007 Had to stop Carboplatin due to sever allergic reaction Jan 2008 Stopped Taxotere due to progression now on Gemzar and Herceptin March 2008 Starting Carboplatin, Abraxane, and Herceptin.