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Chelee · 08-04-2006, 07:16 PM

Maria, Thanks for giving me something positive to think about. I never thought of how we now have the herceptin...and we KNOW that study didn't include that. I will take any positive thing I can think of to help ease my stress level right now. And your right about the radiation only hitting a sliver of lung...but on me...thats alot. Thats why all the doctors were discussing me. I HAD to be different.

I ONLY have 39% use of my lungs right now...and my rad doc said he would probably hit another 12%. That 12% is ALOT in my case...thats what scares me. I don't want to be hooked to oxygen all the time. I have been there and done that already through chemo. And rads damage is permanet. I am stuck between a rock and hard place. The NORMAL lung on any person could handle this...but my lungs aren't normal. (I don't have healthy lungs..in fact my CT scans after my chemo shows MORE permanet damage in both lower lungs.) Scarring it said.

But I am glad you pointed out the herceptin...that has to of helped some. I wonder what their studies would of been had they been included? I pray to God I get through this...I have never been so terrified.

Thanks Maria.

Chelee

08-04-2006, 07:16 PM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Maria, Thanks for giving me something positive to think about. I never thought of how we now have the herceptin...and we KNOW that study didn't include that. I will take any positive thing I can think of to help ease my stress level right now. And your right about the radiation only hitting a sliver of lung...but on me...thats alot. Thats why all the doctors were discussing me. I HAD to be different. I ONLY have 39% use of my lungs right now...and my rad doc said he would probably hit another 12%. That 12% is ALOT in my case...thats what scares me. I don't want to be hooked to oxygen all the time. I have been there and done that already through chemo. And rads damage is permanet. I am stuck between a rock and hard place. The NORMAL lung on any person could handle this...but my lungs aren't normal. (I don't have healthy lungs..in fact my CT scans after my chemo shows MORE permanet damage in both lower lungs.) Scarring it said. But I am glad you pointed out the herceptin...that has to of helped some. I wonder what their studies would of been had they been included? I pray to God I get through this...I have never been so terrified. Thanks Maria. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.