Soon I hope
Thank you all for your constant support through all of this. I am almost afraid to get too confident since I am not on it yet....but
I did have the encocardiogram last Friday (all was good) and I am having a CT scan tomorrow and that should be all for now. My oncs office has not received the drug yet but hoping to this week (I call and check with them every day)
I was not checked specifically for Her1 although I know that Tykerb is suppose to target those also.
I am not quite sure when this office applied for the EAP program but am assuming it was as soon as it was opened up for compassionate use which I think was a couple of months ago. I can find out when I go this Thursday. and yes Lisa, they have had paperwork going back and forth for a while (this is why I am so anxious since it seems to go on forever) Everytime I call the co-ordinator there is another piece of paper she has to send. I will meet with the co-ordinator in the office on Thursday and if they have all of my test results back, they have to fax over to GSK and have me documented with tumor size, then and only then can I start on the chemos. This week is 7 weeks without chemo for me so you can just imagine how I am bouncing off the walls (and I am a pretty patient person) . I can only imagine how big my tumors must be by now.
I think that if you are approved for the EAP program you will be taking Tykerb with Xeloda. You will bet both on this program. The Tykerb with or without Herceptin I believe is a trial being conducted.
I will certainly let everyone know the outcome of this week and wish those of you waiting the best of luck and speedy acceptance.
Take Care
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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