HER2 Support Group Forums - View Single Post - MRI of brain-Results are back...

Chelee · 07-26-2006, 08:45 PM

Lexi, I think it must be the herceptin. I have read several women like us are talking about these darned headaches. I am sure sorry to hear you have suffered the same thing...but glad to hear your scan was CLEAN too.

Yeah.

Becky & Tammy, I WILL try the flonase, if it worked for both of you...thats enough to make me give it a try. I appreciate the help. I will try anything at this point...I hate headaches.

Becky, I am still using pre-meds for my herceptin. I always have. I know sometimes the nurses and others will say you don't need them...but I did herceptin twice WITHOUT any of them...and I did have problems. Nothing serious...but I rather stick with them for now. I have enough problems. lol I still get benedryl, tylenol and tagment.

I have ANOTHER appt tomorrow for a lung function test at the hosptial...so I will run to the drug store and get me some flonase. I can't wait to try that. It just might do the trick. Thanks!

I haven't gotten to start Rads yet...I am past due. But my pulmonary doctor ordered this lung function test for me and now its delayed my Rads. I will be at eight weeks as of next Monday...and they say to start in 3 to 5 weeks. I hope this doesn't cost me in the long run?!

Chelee

07-26-2006, 08:45 PM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Lexi, I think it must be the herceptin. I have read several women like us are talking about these darned headaches. I am sure sorry to hear you have suffered the same thing...but glad to hear your scan was CLEAN too. Yeah. Becky & Tammy, I WILL try the flonase, if it worked for both of you...thats enough to make me give it a try. I appreciate the help. I will try anything at this point...I hate headaches. Becky, I am still using pre-meds for my herceptin. I always have. I know sometimes the nurses and others will say you don't need them...but I did herceptin twice WITHOUT any of them...and I did have problems. Nothing serious...but I rather stick with them for now. I have enough problems. lol I still get benedryl, tylenol and tagment. I have ANOTHER appt tomorrow for a lung function test at the hosptial...so I will run to the drug store and get me some flonase. I can't wait to try that. It just might do the trick. Thanks! I haven't gotten to start Rads yet...I am past due. But my pulmonary doctor ordered this lung function test for me and now its delayed my Rads. I will be at eight weeks as of next Monday...and they say to start in 3 to 5 weeks. I hope this doesn't cost me in the long run?! Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.