HER2 Support Group Forums - View Single Post - Talked to Genentech, herceptin weekly or 3 wks.

Chelee · 07-26-2006, 08:27 PM

Becky, Thanks for your post...I have to admit I wanted to ask this women from Genentech why she said herceptin was not FDA approved? I was LOST on that one. Now I see....

I do know the women I spoke to wanted to make it clear that the trials they did here in the USA were weekly only. So she said they really could not say anything else to me. Thats why she referred me to my onc doc. Thats interesting to hear Sloan gives it in the 3 week dose.

You sure have alot of great information on this Becky. Thanks for posting it! I know I sure enjoyed having my herceptin in a 3 wk dose this time. I've had SO MANY doctors appts and tests that it was one less thing to do. Now I just might re-think this and STAY on the 3 wk dose.

You said the running nose and headache goes away in time. I wondered if it might get better because when I FIRST started WEEKLY herceptin I had ALL KINDS of sinus problems, crusty, bloody nose...you name it. But after having the weekly herceptin a while...it all went away. So maybe I will give it another shot and see what happens. I am so tired of living down there.

Great post Becky...thanks for all the great information. It was very helpful to me. (and no doubt many others.)

Chelee

07-26-2006, 08:27 PM	#5
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Becky, Thanks for your post...I have to admit I wanted to ask this women from Genentech why she said herceptin was not FDA approved? I was LOST on that one. Now I see.... I do know the women I spoke to wanted to make it clear that the trials they did here in the USA were weekly only. So she said they really could not say anything else to me. Thats why she referred me to my onc doc. Thats interesting to hear Sloan gives it in the 3 week dose. You sure have alot of great information on this Becky. Thanks for posting it! I know I sure enjoyed having my herceptin in a 3 wk dose this time. I've had SO MANY doctors appts and tests that it was one less thing to do. Now I just might re-think this and STAY on the 3 wk dose. You said the running nose and headache goes away in time. I wondered if it might get better because when I FIRST started WEEKLY herceptin I had ALL KINDS of sinus problems, crusty, bloody nose...you name it. But after having the weekly herceptin a while...it all went away. So maybe I will give it another shot and see what happens. I am so tired of living down there. Great post Becky...thanks for all the great information. It was very helpful to me. (and no doubt many others.) Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.