HER2 Support Group Forums - View Single Post

Chelee · 07-23-2006, 03:40 PM

Tom, You sure are a funny guy. I think its LONG over due that I grow some much needed parts in my briefs as you said. lol I love your sense of humor!
I also liked your comment about me getting the "50 cent tour". That REALLY is about what I have gotten so far. You come up with some good ones.

I have a bunch of questions written down for my Rad onc appt tomorrow morning. I think they are good ones. I am going to wipe off that silly grin I get on my face and be more serious tomorrow. I am NOT leaving till I get a answer to every one of my questions.

This entire health care system needs a MAJOR over haul. They have far too many patients and so little time. Things need to change. But my primary physical told me years ago that things would get WORSE before better...and he was right! He said the bigger these HMO's get...the more control they will have which will cost us (the patient) & the doctors. Its so true...I have lived through it. I know its not easy for these doctors at times either...but they still choose that profession and their mistake, or not talking to us could cost a lot more then a paycheck.

It sure sounds like you keep them on their toes Tom. lol Knowledge as we all know is power...and when they see you coming they know they can't dance around you! (Thats a big advanage to you.) They probably think you really are a doctor some where but you just aren't telling them. lol I bet you make them a bit nervous.

Thanks for all the words of wisdom and the much needed help. Hopefully I will have a better outcome tomorrow with this Rad onc.

If something doesn't change soon, I think I might do as Bev mentioned..take my story to a local newspaper. And believe me..I know which one. I worked at one for six years.

I hate to do that...but this has really been a nightmare.

I just want to be treated like everyone else...nothing special. I am not use to doctors not taking the time to explain anything to you. I have NEVER had this problem. I will let you all know how it goes after tomorrow.

Thanks a million to all of you.

Chelee

07-23-2006, 03:40 PM	#19
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Tom, You sure are a funny guy. I think its LONG over due that I grow some much needed parts in my briefs as you said. lol I love your sense of humor! I also liked your comment about me getting the "50 cent tour". That REALLY is about what I have gotten so far. You come up with some good ones. I have a bunch of questions written down for my Rad onc appt tomorrow morning. I think they are good ones. I am going to wipe off that silly grin I get on my face and be more serious tomorrow. I am NOT leaving till I get a answer to every one of my questions. This entire health care system needs a MAJOR over haul. They have far too many patients and so little time. Things need to change. But my primary physical told me years ago that things would get WORSE before better...and he was right! He said the bigger these HMO's get...the more control they will have which will cost us (the patient) & the doctors. Its so true...I have lived through it. I know its not easy for these doctors at times either...but they still choose that profession and their mistake, or not talking to us could cost a lot more then a paycheck. It sure sounds like you keep them on their toes Tom. lol Knowledge as we all know is power...and when they see you coming they know they can't dance around you! (Thats a big advanage to you.) They probably think you really are a doctor some where but you just aren't telling them. lol I bet you make them a bit nervous. Thanks for all the words of wisdom and the much needed help. Hopefully I will have a better outcome tomorrow with this Rad onc. If something doesn't change soon, I think I might do as Bev mentioned..take my story to a local newspaper. And believe me..I know which one. I worked at one for six years. I hate to do that...but this has really been a nightmare. I just want to be treated like everyone else...nothing special. I am not use to doctors not taking the time to explain anything to you. I have NEVER had this problem. I will let you all know how it goes after tomorrow. Thanks a million to all of you. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.