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It a little complicated
Hi Esther
Well, the situation has gotten a little more complicated.
Since my last regimen of Taxol/Carbo/Herceptin did not even phase my two tumors, we stopped all together except for taking Herceptin. I have been investigating the Tykerb EAP program in my area and am at waiting on my doctors office to open up (which should be within the next few weeks) Meantime I have already been without any chemo except the Herceptin for 5 weeks. I can't start anything or it will disqualify me for the Tykerb. I have nothing else to take at this point and the tumors are growing. I feel fine now and could travel but our leave date is 8/23 (for one month) and starting on the study will probably interfere with the followups they will probably need to do.
I know that the trip is secondary to my life right now, but am still working on going. I am not giving up that thought yet. So you see, right now I take everything literally one hour at a time waiting on news.
I am very nervous knowing that the tumors are in there growing as we speak but am getting myself in a peaceful place to enable myself to handle the wait.All of us know how terrifying that WAIT is.
So even if I do not get to make my trip, I will enjoy your stories when you return. HAVE A MARVELOUS TIME. The planning is almost as exciting as the trip itself.
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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