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IRENE FROM TAMPA · 07-13-2006, 03:51 PM

Hi Julie

How long have you been on Herceptin?

I started on it in 1999 weekly and in around 2003 I started experiencing severe leg and hand cramps. My legs got them terribly. I kept bringing it up to my onc. but they had no one with similar synthoms.

When I was taken off of Herceptin in 2005 (I was starting on Abraxane and my onc did not want me on both since Abraxane had just come out) within about 3 months my cramps/spasms were gone.

I started back up on Herceptin this year and so far have had only a few in my hands (thank goodness) so we will see.

Good luck

07-13-2006, 03:51 PM	#2
IRENE FROM TAMPA Senior Member Join Date: Oct 2005 Location: TAMPA, FL Posts: 568	Hand cramps Hi Julie How long have you been on Herceptin? I started on it in 1999 weekly and in around 2003 I started experiencing severe leg and hand cramps. My legs got them terribly. I kept bringing it up to my onc. but they had no one with similar synthoms. When I was taken off of Herceptin in 2005 (I was starting on Abraxane and my onc did not want me on both since Abraxane had just come out) within about 3 months my cramps/spasms were gone. I started back up on Herceptin this year and so far have had only a few in my hands (thank goodness) so we will see. Good luck __________________ Irene from Tampa 1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU 1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER TREAT: STEM CELL REPLACEMENT/HERCEPTIN. 2002 - RECUR TO LIVER TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA. 2004 - TUMORS STILL IN LIVER TREAT: RFA TO LIVER STABLE UNTIL 2004 - TUMOR PROGRESSION IN LIVER. TREAT: RESECT HALF OF LIVER. 2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER. TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON THIS TRIO. STARTED ON ABRAXANE. 2006 - PROGRESS WITH 2ND TUMOR GROWTH. TREAT: AUG. BEGAN ON TYKERB/XELODA TRIAL. CONSIDERED STABLE TO DATE. 2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO PROGRESS STARTING TYKERB/AVASTIN. NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH IN ABDOM. AND TWO NEW TUMORS IN NECK AREA. BEGAN HERCEPTIN/AVASTIN/TAXOTERE Feb 08 - Ixempra/Xeloda June 08 - Her/DM1 trial *"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO* *NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."*