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Chelee · 07-09-2006, 10:48 PM

Sherry, I am sorry you have these awful headaches...but I am also glad to hear about it as I have had the worse headache since June 23rd. Won't forget that date!

I hardly ever have headaches...and this one WON'T go away. My last full cycle of chemo was June 12th and I am ONLY on weekly hercetpin. So maybe my body and head misses the TCH. lol (Not!)

I have a brain MRI not this week...but next. I am stressing over it...and you know why. I PRAY mine comes back clean like yours did. I am hoping it is from the herceptin since it *use* to cause me lots of sinus problems.

Its funny when I first started the herceptin back in Feb. of this year. I had the runny nose, inside was crusty & dried out...very painful at times. If I blew my nose a little bloody. But I would have slight headaches from it back then for quite a while.

Then it seemed like after about 3 months of herceptin...I QUIT having the sinus problems, bloody, crusty nose? Its like my body got use to it? (At first I thought it was because I was getting more Procrit due to low rbc's.) That was about the same time my sinuses got better.

But now this darned headache has me worried. I had my first chemo in Feb. So me and you are close in the time frame for dealing with this. I noticed you said your headache pain is between your eyes, nose, & temples. That is EXACTLY where mine is. (I almost feel relieved hearing that from you!) Maybe it IS the darned herceptin?

I noticed you are still getting herceptin. I have really bad pain just LIKE YOU. Between my eyes, my temples are killing me! Nose hurts a little...more of the pain is kind of behind the nose..hard to explain. Then some pain at the base of my head in the back. But MOSTLY in the front where my eyes are...and temples. I thought it was my TMJ. Can't wait to have my scan and hear its CLEAN. (Knock wood.) Because this is terrible having a non-stop headache which I know you can relate.

Thanks to your post...I am going to convince myself its herceptin related and try to relax some. I have taken advil, tylenol, vicodin...nothing gets rid of it. Here's hoping yours disappears. Like you said, its draining to have a headache all the time. Ugh.

I go for more herceptin in the morning..I hope and pray it doesn't get any worse after that. Hang in there Sherry...what choice do we have. But my quess now is it IS herceptin related. It sure caused me alot of sinus problems in the beginning. So thats probably all it is.

Chelee

07-09-2006, 10:48 PM	#5
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Sherry, I am sorry you have these awful headaches...but I am also glad to hear about it as I have had the worse headache since June 23rd. Won't forget that date! I hardly ever have headaches...and this one WON'T go away. My last full cycle of chemo was June 12th and I am ONLY on weekly hercetpin. So maybe my body and head misses the TCH. lol (Not!) I have a brain MRI not this week...but next. I am stressing over it...and you know why. I PRAY mine comes back clean like yours did. I am hoping it is from the herceptin since it use to cause me lots of sinus problems. Its funny when I first started the herceptin back in Feb. of this year. I had the runny nose, inside was crusty & dried out...very painful at times. If I blew my nose a little bloody. But I would have slight headaches from it back then for quite a while. Then it seemed like after about 3 months of herceptin...I QUIT having the sinus problems, bloody, crusty nose? Its like my body got use to it? (At first I thought it was because I was getting more Procrit due to low rbc's.) That was about the same time my sinuses got better. But now this darned headache has me worried. I had my first chemo in Feb. So me and you are close in the time frame for dealing with this. I noticed you said your headache pain is between your eyes, nose, & temples. That is EXACTLY where mine is. (I almost feel relieved hearing that from you!) Maybe it IS the darned herceptin? I noticed you are still getting herceptin. I have really bad pain just LIKE YOU. Between my eyes, my temples are killing me! Nose hurts a little...more of the pain is kind of behind the nose..hard to explain. Then some pain at the base of my head in the back. But MOSTLY in the front where my eyes are...and temples. I thought it was my TMJ. Can't wait to have my scan and hear its CLEAN. (Knock wood.) Because this is terrible having a non-stop headache which I know you can relate. Thanks to your post...I am going to convince myself its herceptin related and try to relax some. I have taken advil, tylenol, vicodin...nothing gets rid of it. Here's hoping yours disappears. Like you said, its draining to have a headache all the time. Ugh. I go for more herceptin in the morning..I hope and pray it doesn't get any worse after that. Hang in there Sherry...what choice do we have. But my quess now is it IS herceptin related. It sure caused me alot of sinus problems in the beginning. So thats probably all it is. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.