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Chelee · 07-09-2006, 07:21 PM

Juanita, I wasn't quite done with that last post to you...it got away from me? Don't know what happened...but it sent itself? Or my fingers hit something?

But thanks for your post...at least I don't feel like I am the ONLY one to get a onc doctor like I did. Yours could of been the brother to the one I first had. This second one I have...she has been a LITTLE better...but still not enough to make me happy. I just don't know WHY they won't answer a simple question for me or my husband. Do they really like stressing me out and having me worried all the time thinking they are hiding things from me?

Its cruel. When I see things on my PET scan that don't sound good and she can't take the time to anwser my questions about it...there is no excuse for it. I have had TWO PET/CT scans since this started. The first onc doc did NOT go over my scan with me...nor show it to me. And now this second onc I changed to did that same thing. Never discussed it with me or showed it to me. I have copies of it...but when I put it in my laptop...I need a doctor to go over with me. And soon I will FIND one.

Even if I have to pay out of pocket.

Thanks so much for your post Junita. I am seriously happy that you landed in good hands finally. I know how frustrating it is to have a doctor like the one you mentioned. Thats just awful. Hang in there...

Chelee

07-09-2006, 07:21 PM	#25
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Juanita, I wasn't quite done with that last post to you...it got away from me? Don't know what happened...but it sent itself? Or my fingers hit something? But thanks for your post...at least I don't feel like I am the ONLY one to get a onc doctor like I did. Yours could of been the brother to the one I first had. This second one I have...she has been a LITTLE better...but still not enough to make me happy. I just don't know WHY they won't answer a simple question for me or my husband. Do they really like stressing me out and having me worried all the time thinking they are hiding things from me? Its cruel. When I see things on my PET scan that don't sound good and she can't take the time to anwser my questions about it...there is no excuse for it. I have had TWO PET/CT scans since this started. The first onc doc did NOT go over my scan with me...nor show it to me. And now this second onc I changed to did that same thing. Never discussed it with me or showed it to me. I have copies of it...but when I put it in my laptop...I need a doctor to go over with me. And soon I will FIND one. Even if I have to pay out of pocket. Thanks so much for your post Junita. I am seriously happy that you landed in good hands finally. I know how frustrating it is to have a doctor like the one you mentioned. Thats just awful. Hang in there... Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.