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Chelee · 07-09-2006, 07:12 PM

Juanita, I am so sorry you had to go through that with your first oncologist. Sounds like you can really relate to what I have been going through. Isn't it just awful to have them TELL you what your going to do and when you ask a question you don't get a straight answer. My onc talks and doesn't say anything if you know what I mean. (I would think it was just me...but my husband has been in there every time with me...they don't tell me anything!)

And like your doctor put in your medical notes that you flat out refused other options. I went through something just like that. I got my notes that were SENT to this OTHER cancer center I was going to for my 2nd opinion...and the LIES in there were unreal. I was beyond PISSED! My onco doc made up things that just were NOT true to make herself look good. But I fixed that when I got to my 2nd opinion.

Your first onc doctor sounds just like the one I was dealing with. Isn't it awful when they won't say anything positive at all. They make you feel like your going to be lucky to be alive in a WEEK. Thats what mine did. This second one hasn't said anything either to make me feel any better.

I am SO GLAD you ended up finding a doctor that cares. Thats all I want. I have NEVER had this problem in my life...and of all the times to have it is when I have cancer.

All my doctors have always been good about explaining things to me and making sure I have no questions.

Even with my chemo..I was NEVER giving my tx options..I was told I would take TCH...nothing else..period. Now I find out by LAW they are suppose to give you all your options. They didn't give me any.

At least you got to throw up all over HIS office.

I feel sorry for you and that it happened...but that serves HIM right. But with the meds they have today...shame on him. He just didn't care it sounds like.

07-09-2006, 07:12 PM	#24
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Juanita, I am so sorry you had to go through that with your first oncologist. Sounds like you can really relate to what I have been going through. Isn't it just awful to have them TELL you what your going to do and when you ask a question you don't get a straight answer. My onc talks and doesn't say anything if you know what I mean. (I would think it was just me...but my husband has been in there every time with me...they don't tell me anything!) And like your doctor put in your medical notes that you flat out refused other options. I went through something just like that. I got my notes that were SENT to this OTHER cancer center I was going to for my 2nd opinion...and the LIES in there were unreal. I was beyond PISSED! My onco doc made up things that just were NOT true to make herself look good. But I fixed that when I got to my 2nd opinion. Your first onc doctor sounds just like the one I was dealing with. Isn't it awful when they won't say anything positive at all. They make you feel like your going to be lucky to be alive in a WEEK. Thats what mine did. This second one hasn't said anything either to make me feel any better. I am SO GLAD you ended up finding a doctor that cares. Thats all I want. I have NEVER had this problem in my life...and of all the times to have it is when I have cancer. All my doctors have always been good about explaining things to me and making sure I have no questions. Even with my chemo..I was NEVER giving my tx options..I was told I would take TCH...nothing else..period. Now I find out by LAW they are suppose to give you all your options. They didn't give me any. At least you got to throw up all over HIS office. I feel sorry for you and that it happened...but that serves HIM right. But with the meds they have today...shame on him. He just didn't care it sounds like. __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.