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Old 07-09-2006, 08:44 AM   #22
IRENE FROM TAMPA
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Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Thanks again for all of your responses - my mind is going crazy not knowing what to do -

JUDIEK - how did you tolerate the Avastin and did it show results pretty quickly?
What are you on now? The trial in my area with the Avastin will have
it in combo with a chemo (I am not sure which one's at this time) and
am still waiting to see if I even qualify. Should know by this week.

PATTYH -The waiting is the worst. I guess that we just need to go on our
trips and try to forget everything else except having a MARVELOUS
TIME. Hope you have a great time on yours and that everything will
be ready for you on your return. Are you getting in a trial or trying
to get it through the compassionate use program?

R.B. - Thanks again for all of your input. I am printing some of these and
going to ready them. I just want to be careful not to take too much
of anything and as I understand, Mega 3 can thin your blood. I had
a stem cell transplant a few years back and my plateletts (although
are ok, they tend to drop now and then) so I want to be careful.

I am a little disappointed to hear that most of these targeted drugs still need to be given with a chemo to work the best. Hopefully, with lots of research, we will get to a time when that will not be necessary.

I am working hard on raising money to walk in the SUSAN G KOMEN 3-DAY WALK which will be in our area in October. I am looking forward to the event (I will be walking with my 3 daughters and some good friends ) and pray that I can still be involved come Oct. I have lots of plans for this year which I am very excited about and hope to complete and with the Grace of God - I WILL.

You all are great.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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