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Chelee · 07-08-2006, 03:37 PM

Hi Janet, Thank YOU SO MUCH for posting to me. I can't find many people that did the TCH regimen. I have read up on it and it has proven to be a good one. But I much like hearing it from people that have actually been on it like you.

My cancer center were offering me AC and Cytoxan now that I am done with the TCH if I wanted it? Which means I would have to go off herceptin. They missed my point...Its not that I didn't feel TCH wasn't any good...I just wondered why everyone and their brother had AC first?

So you were in a study at Dana Farbar. If I understand this right...you had the TCH BEFORE your mastectomy in order to shrink the tumor...right? Then after your surgery you had the AC followed by herceptin. Sounds like it worked great. I am so glad to hear it worked so well. (I wonder if I SHOULD follow up with AC & Cytoxan like they mentioned to me?) All these decisions are so hard. Thanks again for posting to me.

Chelee

07-08-2006, 03:37 PM	#16
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Hi Janet, Thank YOU SO MUCH for posting to me. I can't find many people that did the TCH regimen. I have read up on it and it has proven to be a good one. But I much like hearing it from people that have actually been on it like you. My cancer center were offering me AC and Cytoxan now that I am done with the TCH if I wanted it? Which means I would have to go off herceptin. They missed my point...Its not that I didn't feel TCH wasn't any good...I just wondered why everyone and their brother had AC first? So you were in a study at Dana Farbar. If I understand this right...you had the TCH BEFORE your mastectomy in order to shrink the tumor...right? Then after your surgery you had the AC followed by herceptin. Sounds like it worked great. I am so glad to hear it worked so well. (I wonder if I SHOULD follow up with AC & Cytoxan like they mentioned to me?) All these decisions are so hard. Thanks again for posting to me. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.