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Old 07-07-2006, 03:55 PM   #12
IRENE FROM TAMPA
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Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
Smile Thanks Barbara

I totally agree with you as I think it would be healing to the mind and soul to get away.

Actually, my onc. really wants me to make this trip and was hoping I could get on the Tykerb/Xeloda trial which is being offered in Tampa. They are both pill forms so she figured this would be great as I could carry them with me and stay on a treatment.

I am waiting to see how long it will take them to get up an running and meantime I am keeping my options open by checking on different trials close by to fall back on. As I am finding out (I have been on the phone all day today) checking on options, that my waiting time will probably be about 3 weeks either place I go to, and since I think I have already exhausted all of the regulare chemos out there I may not have a choice but to wait to try one of the trials. Knowledge is power so I will keep on checking out as much as I can this week end and try to make a decision by next week when I see my onc. on Wednesday.

Thank you so much Barbara for your support.
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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