HER2 Support Group Forums - View Single Post - Any Stage II or III' Ladies getting Herceptin beyond Year Two

07-03-2006, 05:39 PM

Hi - I have been on Herceptin 18 months after stage 3 breast cancer in early 2005. I had neoadjuvant therapy with Taxol +FEC + Herceptin, double mastectomy, 6 weeks radiation. My tumor was 6.3cm and many positive nodes (will never know for sure how many due to neoadjuvant therapy), but they aspirated 4 at diagnosis and all were positive. My doctor has agreed to keep me on Herceptin for 2 years, but now I get a very bad rash on my legs day 4 or 5 after Herceptin and I feel like my body is telling me it has had enough. Any one else with a rash like that? Anyway - I am starting to believe that your body may know when it is time to stop and am considering stopping due to this terrible rash. I am very afraid of stopping, because I know how great this drug is performing. Maybe I could convince them to switch me to tykerb?

07-03-2006, 05:39 PM	#9
Unregistered Guest Posts: n/a	Beyond one year Hi - I have been on Herceptin 18 months after stage 3 breast cancer in early 2005. I had neoadjuvant therapy with Taxol +FEC + Herceptin, double mastectomy, 6 weeks radiation. My tumor was 6.3cm and many positive nodes (will never know for sure how many due to neoadjuvant therapy), but they aspirated 4 at diagnosis and all were positive. My doctor has agreed to keep me on Herceptin for 2 years, but now I get a very bad rash on my legs day 4 or 5 after Herceptin and I feel like my body is telling me it has had enough. Any one else with a rash like that? Anyway - I am starting to believe that your body may know when it is time to stop and am considering stopping due to this terrible rash. I am very afraid of stopping, because I know how great this drug is performing. Maybe I could convince them to switch me to tykerb?