HER2 Support Group Forums - View Single Post

Chelee · 07-02-2006, 06:44 PM

Sassy, Very good point about going early. I don't have to go as far as you. That HAD to of been rough driving that far everyday. Its only about 10 minute drive for me. I keep seeing people mentioning the machines breaking down at times. That is something I would of never thought about. Glad it was brought up. I will ask them how often that happens, and find out how many Rad machines they have there?

Bev, Your right about the location...I was checking out another cancer center for a 2nd opinion on my rads. But my current center is only 10 minutes away...where as the other one is 45 minute drive. I CAN'T imagine the way I feel these days driving that far in the traffic I have here. So that I take in big consideration. I am suppose to go for a total of six weeks daily. That is going to be so hard on me. But one day at a time...right. If all you gals can do it...I can too some how? (I hope.)

I like your point about the waiting room Bev...that is the only time I had fun going to my infusions. I loved all the people there and got to know so many of them. We all talked, laughed and had fun. So I hope the Rads Dept is like that too.

Maria, That is some GREAT information I needed. Thanks! I didn't know about any of that. I do know my center SAYS they have a TEAM apporch...not sure how well they use it after some problems I have ran into. But my case was presented to a cancer board before all this started and it was suppose to of been discussed?

But now when you meantion TEAM as in a dosimeter specialist, a nuclear physicist & Rad oncologist...I HOPE thats the team they meant? I WILL now know to ASK these question before I start tx. I have a Rad appt next week so I have been writing down all my questions. These that you have are excellent and very important to me since I have some problems with missing ribs that can cause me serious problems. I NEED to have someone experienced doing my rads...not techs that are still in training. I have had enough problems as it is. Thanks so much for the info!

Chelee

07-02-2006, 06:44 PM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Sassy, Very good point about going early. I don't have to go as far as you. That HAD to of been rough driving that far everyday. Its only about 10 minute drive for me. I keep seeing people mentioning the machines breaking down at times. That is something I would of never thought about. Glad it was brought up. I will ask them how often that happens, and find out how many Rad machines they have there? Bev, Your right about the location...I was checking out another cancer center for a 2nd opinion on my rads. But my current center is only 10 minutes away...where as the other one is 45 minute drive. I CAN'T imagine the way I feel these days driving that far in the traffic I have here. So that I take in big consideration. I am suppose to go for a total of six weeks daily. That is going to be so hard on me. But one day at a time...right. If all you gals can do it...I can too some how? (I hope.) I like your point about the waiting room Bev...that is the only time I had fun going to my infusions. I loved all the people there and got to know so many of them. We all talked, laughed and had fun. So I hope the Rads Dept is like that too. Maria, That is some GREAT information I needed. Thanks! I didn't know about any of that. I do know my center SAYS they have a TEAM apporch...not sure how well they use it after some problems I have ran into. But my case was presented to a cancer board before all this started and it was suppose to of been discussed? But now when you meantion TEAM as in a dosimeter specialist, a nuclear physicist & Rad oncologist...I HOPE thats the team they meant? I WILL now know to ASK these question before I start tx. I have a Rad appt next week so I have been writing down all my questions. These that you have are excellent and very important to me since I have some problems with missing ribs that can cause me serious problems. I NEED to have someone experienced doing my rads...not techs that are still in training. I have had enough problems as it is. Thanks so much for the info! Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.