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Dear Hanna,
We are a family here, and sharing and supporting is what it's all about, so please don't feel foolish. Kudos for convincing your oncologist to continue Herceptin, as you are correct in believing it's keeping the rest of your body NED. Several members have the same situation, continuing Herceptin to remain NED in body while treating brain mets separately.
Temodor is promising, in fact PattyZ is treating multiple lesions with a combination of Temodor and Xeloda, which also is believed to cross the BBB. Hope she'll see this thread and respond, or you could post a question to her directly.
Have you considered going directly to Gamma Knife, then following with the chemo as a back-up? Don't even know if that would be standard protocol, but I would want to explore all options for hitting this recurrence hard and fast.
Many hugs to you and please keep us posted.
<3 Lolly
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