HER2 Support Group Forums - View Single Post - Al is right, check the brain, Can you help me?

StephN · 06-26-2006, 03:51 PM

... but join the club. Yes, as PattyZ mentioned, if there is no active cancer in the rest of your body, you have a good chance of conquering the few brain mets you have. Especially at their size.
This also means that you will be monitored by brain MRI every 2 or 3 months for the foreseeable future to catch any more that might show up in an early stage. It is good that your body gave you some warning with the headache. My body gave me NO warning with symptoms and I had a met get rather large that is giving me some problems later.

Looks like your support at home is very strong and this will help.

As far as RB's information on the fatty composition of various brain tumors, I am trying to figure out if it is good to intake the nuts and things, or if I should lay off them. This fatty acid thing IS rather complicated and I have a hard time just focusing on the long names. I do take my flax seed oil daily and it is balanced between the omega 3, 6 and 9s. ALso use a lot of high quality olive oil.

06-26-2006, 03:51 PM	#11
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Sorry to hear ... ... but join the club. Yes, as PattyZ mentioned, if there is no active cancer in the rest of your body, you have a good chance of conquering the few brain mets you have. Especially at their size. This also means that you will be monitored by brain MRI every 2 or 3 months for the foreseeable future to catch any more that might show up in an early stage. It is good that your body gave you some warning with the headache. My body gave me NO warning with symptoms and I had a met get rather large that is giving me some problems later. Looks like your support at home is very strong and this will help. As far as RB's information on the fatty composition of various brain tumors, I am trying to figure out if it is good to intake the nuts and things, or if I should lay off them. This fatty acid thing IS rather complicated and I have a hard time just focusing on the long names. I do take my flax seed oil daily and it is balanced between the omega 3, 6 and 9s. ALso use a lot of high quality olive oil. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.