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Johanna,
I've seen that Tykerb is available internationally and it has shown response for brain mets. I will be asking my onc about taking it as well...
My first dx of brain mets was Sept. '02. Since then, I've had several recurrances, but I have NOT done WBR. Mine (16 lesions) were treated with various focalized rads. So many times that any more comes with high potential permanent damage.
My latest recurrance of 8 lesions has responded very well to the combination of Temodar/Xeloda. Currently I am 'stable', as the size has not increased in six months, no new lesions. As long as I remain 'stable' with no symptoms, I can take a break from my chemo, so as not to become resistant to this good combination. But it is still scarey!
There are gals who have had success with WBR. There are others who still progress after WBR. But, they can then be treated with a focalized raditation. And now, we have a few small things in the way of drugs that can help, as well.
It is good that you have responded well to your other treatments, and that you are stable or NED in body. These are POSITIVES in your latest dx. of brain mets. This has been my experience, too.
I think if you did a search here, you would be inundated with posts concerning brain mets, treatments, successes etc.
Very best wishes to you,
pattyz
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