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Chelee · 06-25-2006, 03:18 PM

Hi Maggilu123, I have so much to learn about all this stuff and chemo regimens, etc. But as Al said in his post...that combo of drugs would concern me?

Myself I am concerned about almost the same thing you are talking about as I have stage IIIA breast cancer and was put on Herceptin, Taxotere, & Carbpotin to start. Now I am done with that and there is mention of putting me on AC and Cytoxan. This put my radar up after being on this board. The WAY I understand it...you USUSALLY always have the AC first followed by other chemo regimens. And you never give herceptin with AC or a drug simumlar to that such as the Epirubicin you mentioned.

This would be quite worrisome to me? I know I have been told you cannot take herceptin and a Epirubicin based drug together. Serious heart problems can arise.

You mentioned your doctors giving you Cytoxan, Epirubicin, and Fluorouracil (5-FU) starting next week. He will also give you decadron and herceptin.

You need to sit your doctor down and have him/her slow down and explain things to you a little better. Sometimes these doctors mean well and just start going a mile a minute and it can get very confusing!

But BEFORE going ahead with this....I really believe you need to talk to him and see if you undestood him completely...and if you did...then PLEASE at least talk to another oncologist before going ahead with that treatment plan. Like Al said...maybe things have changed...but when it comes to the chemo regimen you mentioned...I don't think it changed that much. We are just trying to help you out and save you some problems...unless we are wrong? But it won't hurt you to talk to some other oncologist first. I wish you all the best. Hang in there.

Chelee

06-25-2006, 03:18 PM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Hi Maggilu123, I have so much to learn about all this stuff and chemo regimens, etc. But as Al said in his post...that combo of drugs would concern me? Myself I am concerned about almost the same thing you are talking about as I have stage IIIA breast cancer and was put on Herceptin, Taxotere, & Carbpotin to start. Now I am done with that and there is mention of putting me on AC and Cytoxan. This put my radar up after being on this board. The WAY I understand it...you USUSALLY always have the AC first followed by other chemo regimens. And you never give herceptin with AC or a drug simumlar to that such as the Epirubicin you mentioned. This would be quite worrisome to me? I know I have been told you cannot take herceptin and a Epirubicin based drug together. Serious heart problems can arise. You mentioned your doctors giving you Cytoxan, Epirubicin, and Fluorouracil (5-FU) starting next week. He will also give you decadron and herceptin. You need to sit your doctor down and have him/her slow down and explain things to you a little better. Sometimes these doctors mean well and just start going a mile a minute and it can get very confusing! But BEFORE going ahead with this....I really believe you need to talk to him and see if you undestood him completely...and if you did...then PLEASE at least talk to another oncologist before going ahead with that treatment plan. Like Al said...maybe things have changed...but when it comes to the chemo regimen you mentioned...I don't think it changed that much. We are just trying to help you out and save you some problems...unless we are wrong? But it won't hurt you to talk to some other oncologist first. I wish you all the best. Hang in there. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.