HER2 Support Group Forums - View Single Post - Al is right, check the brain, Can you help me?

06-25-2006, 02:14 PM

My name is Johanna from Iceland. Some days I complained about headache and Al was right. They found brain mets!!!!!!!
Im in a complete shock. I have 8 small lesion, very small the onc says. I will have to have radiation ten times in the beginning and then a check.
DX jan2002 in remission for 31/2 year until last july, bone mets (wll managable) with navelbine and Femara (Im weakly er+ but high pr+) Suddenly a lesion in the liver. Very good results with herceptin and TAxotere. All gone after 16 times. Fine and gone from the liver.
And now this, its getting too much.

What about Tykerb? Will it help besides the radiation. Im told there is a possibiliy of complete vanish with radiation in brain but will it come bask?????

I have asked for Tykerb as a compassionate use and the doctor promise to help me get it if possible. Can you advice me ?????

06-25-2006, 02:14 PM	#1
Unregistered Guest Posts: n/a	Al is right, check the brain, Can you help me? My name is Johanna from Iceland. Some days I complained about headache and Al was right. They found brain mets!!!!!!! Im in a complete shock. I have 8 small lesion, very small the onc says. I will have to have radiation ten times in the beginning and then a check. DX jan2002 in remission for 31/2 year until last july, bone mets (wll managable) with navelbine and Femara (Im weakly er+ but high pr+) Suddenly a lesion in the liver. Very good results with herceptin and TAxotere. All gone after 16 times. Fine and gone from the liver. And now this, its getting too much. What about Tykerb? Will it help besides the radiation. Im told there is a possibiliy of complete vanish with radiation in brain but will it come bask????? I have asked for Tykerb as a compassionate use and the doctor promise to help me get it if possible. Can you advice me ?????