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Old 06-22-2006, 01:56 PM   #2
Lolly
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Join Date: Aug 2001
Location: Oregon
Posts: 1,756
Hi Kat, welcome to the group! The question of late Herceptin for high risk early stagers has been discussed here by several who are in your shoes, Alaska Angel for one. There are no clear guidelines yet, but you'd need an agressive onc who's willing to push the envelope and prescribe it "off-label", and then you might have trouble getting your insurance to cover it, but maybe there are some who will respond who've been down that road.

I'm going into my 6th year of Herceptin use, but I have recurrent BC in my lymph nodes so am considered metastatic. Have had few side effects from Herceptin, other than occasional tiredness and lower ejection fraction of the heart; most of my long term side effects are from the various chemos I've been on.

Best wishes in your search for answers, and again, welcome. You're among friends here.

<3 Lolly
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