HER2 Support Group Forums - View Single Post - Losing my med onc

StephN · 06-22-2006, 12:04 PM

I wanted to let you know that I really appreciate your thoughts and support on this issue. As many have said, TRUST is such a biggie with our disease. The med onc I am losing is moving several states away, so not very accessible.

With the breast group at my cancer center is another top notch (and been around a while) woman onc who has agreed to take over my care. She takes very few new patients as she does a lot of research and goes to all the major breast cancer meetings to make presentations. But, she has a new nurse who I know from the infusion suite that I like a lot. The PA who I know through my 6 years is on extended maternity leave, but I hear the new one is very good.

A really great thing about this change is that my "new" med onc is the person who told me about this web site!!! She met Chris & Joe in San Antonio about a year after this site was launched. (She is a moving force behind Team Survivor Northwest and I had first contact with this doc in this relationship.) I have been here ever since ... H-e-e-l-l-o-o!

06-22-2006, 12:04 PM	#18
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Problem solved I wanted to let you know that I really appreciate your thoughts and support on this issue. As many have said, TRUST is such a biggie with our disease. The med onc I am losing is moving several states away, so not very accessible. With the breast group at my cancer center is another top notch (and been around a while) woman onc who has agreed to take over my care. She takes very few new patients as she does a lot of research and goes to all the major breast cancer meetings to make presentations. But, she has a new nurse who I know from the infusion suite that I like a lot. The PA who I know through my 6 years is on extended maternity leave, but I hear the new one is very good. A really great thing about this change is that my "new" med onc is the person who told me about this web site!!! She met Chris & Joe in San Antonio about a year after this site was launched. (She is a moving force behind Team Survivor Northwest and I had first contact with this doc in this relationship.) I have been here ever since ... H-e-e-l-l-o-o! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.