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vickie h · 06-22-2006, 10:03 AM

I was diagnosed in 2004 with stage IIIb her2 +++ er- pr- Inflammatory Breast Cancer. Underwent 4 rounds of Taxotere/carbo plus herceptin every 3 weeks, had mastectomy w/ 19 nodes removed-4 positive at UCLA. 6 weeks later there was a new tumor above the incision. Radiation 36X, weekly taxol low dose for 5 months with herceptin. Skin rashes appeared and 33X more radiation and six months more of taxol/herceptin weekly. I now am on Avastin and Herceptin only for the past 10 months and I'm doing great (Avastin and herceptin every 2 weeks). I am now interested in Tykerb if needed , does anyone know about it? Since being diagnosed (Iam 58 today) I have met several other women newly diagnosed with her2 plus IBC. I also take large doses of vitamin C, Lysine, Proline, Taurine, as well as a balanced diet of greens and vitamins. I take 9000 mg of C and Lysine, 8000 mg of proline, 1500 mg of magnesium, vitamin D3 and calcium. I stay away from all soy products, as I was a Vegan for 25 years and lived on lots of soy. There are many studies now linking it to breast cancer. I also take 2 drops of Lugol's solution (an iodine supplement) because my Oncologist is doing research on the link between Iodine deficiency and Breast and prostate cancer. I'm happy I found this site and wish you all the best.

06-22-2006, 10:03 AM	#24
vickie h Senior Member Join Date: Jun 2006 Location: san luis obispo, ca Posts: 1,150	IBC on the rise? I was diagnosed in 2004 with stage IIIb her2 +++ er- pr- Inflammatory Breast Cancer. Underwent 4 rounds of Taxotere/carbo plus herceptin every 3 weeks, had mastectomy w/ 19 nodes removed-4 positive at UCLA. 6 weeks later there was a new tumor above the incision. Radiation 36X, weekly taxol low dose for 5 months with herceptin. Skin rashes appeared and 33X more radiation and six months more of taxol/herceptin weekly. I now am on Avastin and Herceptin only for the past 10 months and I'm doing great (Avastin and herceptin every 2 weeks). I am now interested in Tykerb if needed , does anyone know about it? Since being diagnosed (Iam 58 today) I have met several other women newly diagnosed with her2 plus IBC. I also take large doses of vitamin C, Lysine, Proline, Taurine, as well as a balanced diet of greens and vitamins. I take 9000 mg of C and Lysine, 8000 mg of proline, 1500 mg of magnesium, vitamin D3 and calcium. I stay away from all soy products, as I was a Vegan for 25 years and lived on lots of soy. There are many studies now linking it to breast cancer. I also take 2 drops of Lugol's solution (an iodine supplement) because my Oncologist is doing research on the link between Iodine deficiency and Breast and prostate cancer. I'm happy I found this site and wish you all the best.